Two decades of longitudinal observational data, captured at the moment of clinical encounter from both physicians and patients.
The RA registry was founded in 2001 and has been continuously collecting data since that time. Over 600 rheumatologists have helped us collect data at 170 sites in over 42 states. We have collected data on just under 460,000 individual visits with a mean disease follow-up duration of 4.2 years and a total of >250,000 patient years of data.
The US rheumatoid arthritis population is unique in that the penetration of biologic agents and JAK inhibitors is at least 50% at any given time, with up to 60% of patients who have ever been exposed to these drugs. As The Corrona Research Foundation (CRF) has access to data collected by CorEvitas, LLC, the CRF can share in one of the most comprehensive data collections ever assembled in patients with these diseases.
PsA data was collected from the outset of the registry in 2001. The manner in which the data were collected was identical to the RA registry — joint counts, visual analogue scales, patient-reported outcomes, laboratory values, radiographic findings, demographics — covering more than 5,000 patients.
In 2013, under the direction of Dr. Philip Mease, the PsA registry was redesigned to collect the more specific clinical elements relative to the PsA patient including percentage of skin covered by psoriasis, nail involvement, enthesitis, dactylitis and independent VAS assessments of skin and joints. At the same time, a new SpA data collection effort was instituted including occiput-to-wall distance, measured side bends, Shober's index, enthesitis and dactylitis scores.
Submit a brief two-paragraph letter of intent — the Board reviews for fit, then full proposals advance to the Clinical Investigators Committee.